"Living with FOP" - living with hope
"Living with FOP" - living with hope
авг 18, 2025

Friends! Our company is pleased to support socially significant projects in the field of healthcare, especially those aimed at long-term care for adults and children with orphan (rare) diseases.

On August 22, 2025, a significant event in the field of medicine will be held in the Vladimir region - the annual conference "Ossifican-2025". The event was organized by the Interregional Public Organization "Living with Ossifican-2025 (Fibrodysplasia ossificans progressiva)" and is designed to bring together specialists, partners and patients to discuss current issues of treatment and social support for people with this rare genetic disease.

Ossifican-2025 is a complex and rare disease that requires an interdisciplinary approach to diagnosis, treatment and patient support. The conference will become a platform for the exchange of experience between leading medical specialists, including dermatologists, neurologists and rheumatologists, as well as representatives of scientific institutions such as the Federal State Budgetary Institution "Research Institute of Rheumatology named after V.A. Nasonova", Federal State Budgetary Institution "Research Institute for Children's Orthopedics named after G.I. Turner" and Federal State Autonomous Institution "National Medical Research Center for Children's Health".

Special attention at the conference will be paid to issues of medical support for patients with FOP, including prevention of complications, drug provision and new approaches to treatment. It is also planned to discuss social aspects of patients' lives, such as access to medical care, psychological support and integration into society.

As part of the business program of the conference, Roman Aleksandrovich Ivanov, a dermatovenerologist at the Research Institute of Pediatric Dermatology of the Federal State Autonomous Institution "National Medical Research Center for Children's Health", will speak. His report "Dermatological aspects of managing children with FOP: current issues and practical recommendations" will be devoted to modern methods of skin care for patients with this disease. The specialist will share his experience in using innovative products from Evers Group Rus, including hydrogel dressings, aerosol foam Pantesan, highly porous wound dressing Khitokol®, as well as other products for the prevention and treatment of skin complications.


We invite you all interested doctors, scientists and those who care about the problems of patients with FOP, to join the event on August 22. The full program and registration link are available on conference website →